My experience with eosinophilic esophagitis ~ Dallas Mom Blog and Fort Worth Mom Blogger: Trendy Mom Reviews
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Wednesday, February 26, 2020

My experience with eosinophilic esophagitis

Disclosure: Let me preface this by telling you that I am not a medical professional.  I have no medical training. My story below is about me and things that I believe may or may not be accurate since I do not have medical training.  You should always visit a doctor and follow their medical advice. If you want, take my story to your doctor and ask what they think, but please never use the internet as your source of medical knowledge and care.  That said, these are my personal thoughts with my experience with eosinophilic esophagitis.

My experience with eosinophilic esophagitis has been a challenge, but I am now doing better than ever. It started as a child that I used to always feel like things were getting stuck in my throat.  I guess that I thought that it was part of life and didn't realize that others didn't have this same problem. However, around 30 years old, I was having a really tough time when I tried to swallow things like carrots.   Something wasn't right, so I visited my doctor and had a referral to a gastroenterologist. He scheduled me for an endoscope.

I was sedated for the procedure and remember some music playing when I went into a room, but don't remember anything during or shortly after the procedure. My family picked me up and said that I was quite loopy and said some crazy things due to the sedation drugs, but I don't remember any of that either.   

What happened during the procedure is that my doctor used a scope and identified the eosinophilic esophagitis.  He also widened some area of my esophagus with a balloon.  He also had me take a prescription.  I took this prescription for two years and it was expensive.  Very expensive.  I talked to him about the price and he said that I could try something less expensive instead and see how it goes.  I then switched to a relatively inexpensive OTC and everything was fine for me. (I purchased in bulk at Costco to save over local drugstore prices.) Well, as time went on, I guess that I became more relaxed because I became as bold as to even buy the store-brand instead of name-brand version of the medicine.  Still, everything was fine.   I then went through a period where I because more athletic and health conscious, building muscle, improving my heart healthiness, and losing all of my fat.  I now run almost an hour each day now.  Well, after my health kick, I stopped taking my medicine all together.  And I am fine. No problems with my eosinophilic esophagitis.   I think that the procedure that my doctor did in combination with my new weight and healthier lifestyle made a big difference. 

There is so little known about eosinophilic esophagitis.  My siblings who live in different states and see different doctors were also diagnosed with eosinophilic esophagitis.  That's weird, right?   I hope that it's not a genetic thing that my children will not have eosinophilic esophagitis.  In any case, I'm glad that my experience spurred a major lifestyle change for me to lose weight through a healthier diet and exercise. It has been 9 years since my initial diagnosis and I'm doing great!

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